Patient and Family Resources

Girl with a butterfly on her nose

Stay Connected and Informed

Are you interested in connecting with other parents and caregivers who have kids with CF? If so, click here to learn more about CF Parent Support, a parent led group which meets monthly to informally discuss rewards and challenges of loving someone with CF.

Internet Resources

Having a wealth of information can be both a blessing and a curse. How do you determine which information is helpful and which is potentially harmful? The most important factor to consider when looking for information on the Internet is that your healthcare providers are still the ones that direct your health care program. It is not advised to make changes to your treatment plan based solely off information gathered from the Internet. Please discuss new findings with your health care provider before making any changes. Here are some sites we have reviewed and found to be among the most informative and trusted.

Cystic Fibrosis Foundation

The CF Breeze – Wisdom & Inspiration for CF Families

Check out the archive below of The CF Breeze quarterly newsletter, a publication authored in collaborative effort by members of the Cystic Fibrosis Family Council.